Jess Wright has opened up about her son Presley's devastating health battle as she revealed she prays to God in hopes that he will be fine.
The former TOWIE star, 39, announced in August the devastating news that her son, 2, had been diagnosed with a rare congenital heart disease called 'Bicuspid Aortic Valve'.
Bicuspid Aortic Valve only affects one percent of the population and means the heart valve has only two small parts, called leaflets, instead of the normal three.
In a new interview, the reality star assured that her son is doing well but that he will require monitoring & care over time.
She told Closer: 'It’s debilitating and it’s awful, but it is what it is. We have to learn to live with it now and pray to God that every result we get is good until he has to have surgery.'
Jess also said that you would never guess anything wrong just by looking at her son because'he's a little dream'.
Jess Wright has opened up about her son Presley's devastating health battle as she revealed she prays to God in hopes that he will be fine (pictured on Morning Live earlier this month)
The former TOWIE star, 39, announced in August the devastating news that her son, 2, had been diagnosed with a rare congenital heart disease called 'Bicuspid Aortic Valve'
When asked when Presley will go for surgery, she said that she is unsure at the moment, but explained how she would take away his pain in a heartbeat if she could.
She continued: 'I would swap my heart with his any day of the week. I pray to God every night that he will be fine.'
Jess and her husband William met in May, 2019, tied in the knot in September, 2021, and then welcomed their first born in May, 2022.
In August, the sister of Mark Wright shared the devastating news about her son's rare heart disease which requires open-heart surgery.
She told her 1.5 million followers that the news 'physically hurts my soul'.
Jess said he was being constantly monitored by doctors and hopes he will be able to have as normal life as possible, but revealed the toddler would need to have open-heart surgery at least twice in his life.
She admitted they had been trying to cope with the news for several months and had been nervous about sharing it, but wanted to raise awareness and hear from other parents who have also gone through it 'to know that we are not alone.'
In her lengthy caption, Jess began with: 'Hey everyone. I have been apprehensive & nervous about writing this post because I knew that once I shared it, it would become even more real, but ultimately I couldn’t hide away from the reality anymore & would love to also raise awareness.'
In a new interview, the reality star assured that her son is doing well but the he will require monitoring & care over time
Jess and William met in May, 2019, tied in the knot in September, 2021, and then welcomed their first born in May, 2022
'A few months ago we learned that our son Presley has a congenital heart disease called ‘Bicuspid Aortic Valve’. Something he was born with & happens to a small 1% of us.'
'Essentially, instead of having three leaflets in his aortic valve, like most, he only has two. This condition affects how blood flows from the heart to the rest of the body and will require monitoring & care over time.'
She went on: 'I won’t go into the full details right now, but whilst this is please God not a fatal disease, we are coming to terms with the fact that our son will need intervention at least twice in his life.'
'By intervention I mean open heart surgery. Saying those words out loud physically hurts my soul, hence why for a few months we have been coping with this news & trying to navigate it.'
'We have been, & will be monitoring Presley's heart closely with doctors every 8-12 weeks, hoping & praying every time we go, that we get the results we need.'
'Ultimately, he will then have intervention when necessary, but the older he can be for that, the better.'
'We know that Presley is strong and resilient. With the help of modern day medicine, Presley will live as normal life as the next child, we hope & pray.'
Reaching out to her followers for any advice, Jess also thanked her family and friends for their support during the 'scary' time.
She wrote: 'I also know that this platform will help me share & get information, express my feelings, find answers to questions, & provide much-needed support and knowledge to others in need.'
In August, she shared the devastating news about her son's rare heart disease which requires open-heart surgery
She admitted they had been trying to cope with the news for several months and had been nervous about sharing it, but wanted to raise awareness and hear from other parents
'I would love to hear from any other parents who are navigating this unknown & very scary territory, as knowledge is power & it is a comfort to know that we are not alone.'
'We are so grateful for the love and support from our family, friends, and this amazing community. Thank you for your positive thoughts, prayers, & for helping us raise awareness about heart health.'
'I will be chatting to the Brompton Fountain children’s charity too, & hopefully helping as best I can in their fundraising, along the way.'
The reality star concluded her post: 'Wishing you all a lovely bank holiday Monday ❤️'.
